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2 and a half years later

 

For the last few weeks I’ve been getting pains in my groin and back ache. I wasn’t due a blood test or check up until July 4th. I have had my bloods check and the oncologist suspects the cancer has returned. This has been confirmed with my bloods doubling to 46..

Gutted is the work i can describe to how I’m feeling, but I’m remaining positive. Everybody tells me I’ve fought it once i can fight it again.

I reached 30 months with re-ocurrance. Thats a great run…. its very positive as the longer you are without re-occurance the better chances you have of the Chemo working again.

Another positive note to add is that after an Ovarian Cancer patient has had their 2nd chemo they are able to take a new drug called “olaparib” This is like a maintenance drug to help keep the cancer from returning.

Im having a CT scan, MRI and more bloods next week. This will inform my oncologist whether i require surgery to remove the cancer or whether i go straight in to chemo. I’m dreading the chemo as its quite harsh and for some reason i don’t tolerate it that well. Some women don’t get many side effects. I think i get them all…

On a positive note they have said that they will spread the chemo over a long amount of time and i would get it once every month for 6 months. This should give me more time to recover between each chemo.

Ill write another blog in May when i know more.

Kate x

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1st blog ever

On the 14th of  February  2014, my life changed forever,

I was diagnosed the Ovarian Cancer, I had surgery to remove all tumours, and i was told that i was Stage 3c.

I had no idea I was ill. I just happened to find a lump in my stomach. I did however have a bad back which i was seeing an osteopath for, looking back i did have other symptoms; heart burn and extreme fatigue. But i didn’t have the common (talked about) symptoms such as feeling full, being bloated, going to the toilet a lot.

I thought i was fit and well. I was even at the gym the day before visiting my doctor.

I met my oncologist almost immediately. I don’t remember much that was said. Once you hear the word cancer you stop breathing. All i could think was that i was about to die. I remember being asked if i had any jewish relatives??? From the type of cancer found from the biopsy they suspected I had the BRCA positive gene.  I knew nothing about BRCA other than i heard Angelina Jolie had it. I didn’t even know there was a cancer such as Ovarian. I actually thought a smear test would check for gynaecology cancers? It turns out i do have the BRCA gene and my grandmother had ovarian cancer. It was kept quiet as it was back in the 70’s and cancer at that time was a taboo subject.

I was told  that I have a 5 percent chance of beating this! I struggled with the thought of dying every day! (I have 3 kids which are my world).

I learnt to meditate and tried really hard to stay positive (very difficult at times).

My oncologist told me I would be having chemo every 3 weeks for 6 rounds, but to expect the cancer to return within then 12 to 18 months. I took these times scales literally, My cancer markers were checked every 3 months and i found i was living and planning my life within these 3 month windows.

If i can give any advice, it would be to not ask for any statistics or talk about re-ocurrance. The documented evidence for Ovarian Cancer is old and out of date. The oncologists really don’t know how each person will react. Everybody is unique. Nobody knows!!! Do not become absorbed in cancer doom and gloom.. live your life to the full like I do.

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